WyzWmn's World©

I’m still having the devil of a time with my eyes

for the first time in my life I understand the term “tired eyes” and when they are not tired they are sore or itchy…

my extending or “big picture” vision is ok for the most part…it’s the minute stuff that’s a challenge…I have to work at focusing for reading the written word on the page or on the screen

My computer time is limited because of the focusing issue and this new medication makes me much more light sensitive (like I needed help eh?) so I have to save the lion’s share of what time I have for work…cos I do have to pay rent

the real kicker for me is the doing nothing when I’m off thing…I can sit still with the best of them, that’s as a result of years of being sick…but for the last 10 years if I’m not on line…I’m reading or watching TV….

and right now it’s not like I can read or watch TV – but I can drive…cos I can see the big picture….

bah!

Yup…I am once again…a paradox of my own making…

I have no idea how long it will be before I can go back to spending regular time on line…and I’m sorry for that… I feel like I’m letting people down

but I also know if I don’t take care of my eyes…I may damage them permanently…and that would mean that I’d be this kind of limited this for the rest of my life…

I mean really…. I worked as a volunteer for the Ride for Sight for 20 years…. I musta learned nuttin!

I’ve been fighting with my GP for 4 years over an ongoing issue with my eyes. In the last 21 days I have lost 8 days of work – I wake up feeling like there is glass in my eyes…they start to run – pour actually…which involves my sinuses and I end up in bed with a sinus headache that is only cured by dark, sleep and quiet…just like a migraine only not quite…(and just try to find some quiet in this freakin building I tell ya!)

For 4 years I’ve been under the impression (from my GP) that I have Lagophthalmos – and treating my eyes for same with little or no respite. I’ve been putting gel in my eyes and taping my damn eye’s shut at night cos the GP said it was my eyes opening a crack while I sleep that was causing the problem.

He says I don’t have Lagophthalmos – what I have is Cogan’s Dystrophy (Map-Dot-Fingerprint Dystrophy). He says that it can be genetic, and that millions of people have it to a degree but never suffer the effects that I have. He says DO NOT TAPE YER EYES SHUT! It apparently causes more trouble than helps.

I just am so pleased that I have an answer…it’s not in my head it’s in my damn eyes!