a little kindness…

goes a long way…

I am continually stymied
by some people’s
complete lack of understanding
or consideration or kindness

the lack of
common garden variety courtesies
amazes me
more than running into an axe murderer
face to face

(and believe me when I say
“been there, done that”)

how hard is please and thank you
and mean it?

why is it so hard to offer courtesy
to strangers
let alone acquaintances
or friends

why does it continue to blow me away
when I hear/see/experience people
without the sense of compassion
to be kind?

wtf is wrong with people?

apparently kindness is a learned trait
it isn’t something
that all people are
born with

and frankly
that lack
speaks volumnes
to humanity’s penchant for
negativity

if someone holds a door open for you
take a second
and say thanks

if you have good service
in a restaraunt, pub, customer desk
say thanks

if you work next to someone
all day long
have the courtesy to say hello
or try a couple
of bland pleasantries
over the course of the day…

it’s pretty simple
being kind
why then am I constantly
farklempt
by people’s lack
thereof?

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I feel this…

my nephew’s lady love is going thru the hell
of being diagnosed with lupus

she’s 21 years old
and hurts as much as an 80 yr old
like all of us living with chronic illness
she has good days
and bad…

today she wrote this…

“this is it.
I wake up. I crawl to the edge of the bed. I sit, head in my hands, tears on my face.
I struggle to stand and walk, I stand in the shower and I let the heat work its way through my body. I feel better. I determine what pain medication to take for the day. I take it. I wait.
I put my makeup on, I stretch my body now that the aches are less. I bend, turn. Stop.
He kneels in front of me and massages my legs and feet. “be careful, baby.” I tense, flinch.
I drive to work, flex my hands on the steering wheel. Hide my skin and eyes from the sun. I love the sun although it burns my eyes and sickens me. I sit in my car, close my eyes. I am strong enough to walk. I am. I know I am.
I work, I flex my hands. My head aches and my nose feels as if its been scalded. I laugh and smile and cringe inside. I am exhausted. My fever rages, my skin itches. My bones ache. My insides ache. I fear whats making them hurt. I fear my future.
Leave work, see doctor. Test after test. Look for problem, fix. Seek and destroy. Wait.
Go home, try and eat. Sick to my stomach, I struggle up the stairs.
I snuggle, I laugh. My life is good, I am lucky.
Rest, laugh. Love. Be calm and prepare. One day down, One day at a time.
This is my life, the life of 2 million other men and women living with my disease. We are at war with our own bodies, the very immune system that is supposed to heal us, is killing us. Lupus is a disease without a face. It has no tests, no outward appearance, no cure. Few treatments.
We hide from the sun, from our favorite foods.
We never bear children.
We replace our organs with hope for a few more years. We take harmful medications, because there is no other choice. There is no help for us, no hope for a cure, little hope for pain relief.
But what else can I do. I must live, so I do. To the absolute best of my ability.”

I am in awe of her strength..
she has a long way to go
dealing with what for many would be a life crushing blow
her motto is
“can’t fail”

she’s real
I’m proud to know her.

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