People just don’t understand….I have Crohn’s Disease.
On any given day I can have some or any of the following symptoms: anemia, arthritis, constipation, decreased appetite/increased appetite, depression, diarrhea, fatigue, gallstones, joint pain, kidney disease, liver disease, mouth sores, ulcers, rectal pain, skin disorders, weight loss/gain, nausea, chest pains, sore eyes(eye conditions), abdominal pain, cramps, bleeding guts, gas and bloating, lethargy, inability to eat most fruits and vegetables, inability to process almost all fibre, inability to process, caffeine, soda, some or all dairy….the list goes on and on…
I can make myself look passable and I can make myself sound passable…but almost all the time I’m lying to you.
I can work for a living but I feel like shit… Anytime you ask me how I am and I say “wonderful”, “delightful”, “just ducky”, “Great!”….I’m full on lying to you… I’m likely in flare and feel like the bottom of the bird cage…or worse.
When you invite me somewhere and I tell you that I can’t make it or that I don’t feel well I’m not lying, I’m not ignoring you and I’m not trying to get rid of you. I sincerely do not feel well every waking moment of every single day.
People that don’t have to worry about shitting their pants in public or throwing up in a restaurant or at your desk at a job have no understanding of what it’s like to live with this disease…
And…sometimes I get fed up because people just don’t understand.